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Polycystic Kidney Disease Foundation launched in Delhi

New Delhi: As part of World Kidney Day (March 13), Sir Ganga Ram Hospital, New Delhi on Thursday started Polycystic Kidney Disease (PKD) Foundation of India.

Dr D S Rana, chairman of PKD Foundation and head of the nephrology department at Sir Ganga Ram Hospital, said, “The foundation will raise awareness of Polycystic Kidney Disease (PKD) among patients, public and the medical community.”

“It will provide information, advice and support to those affected. Through the foundation, genetic testing will be provided on complimentary basis and finances will be raised to fund research. This will help in finding cure for PKD,” he said.

Dr I C Verma, secretary of PKD Foundation and director of medical genetics at Sir Ganga Ram Hospital, said, “Polycystic Kidney Disease is the world’s most common inherited disorder. It is twice as common as multiple sclerosis and affects more people than muscular dystrophy, haemophilia, down syndrome, and cystic fibrosis. Its frequency ranges from 1 in 800 to 1 in 1000 people. Almost 10 lakh individuals in India have ADPKD (Autosomal Dominant Polycystic Kidney Disease).”

Dr Rana further said, “This disease causes 5 per cent of end stage renal disease in India. If one of the parents has ADPKD there is a 50 per cent chance that the child will inherit the disease.”

The other members of the Foundation are leading nephrologists like Dr M Rajapurkar (Ahmedabad), Dr Jai Prakash (Varanasi), Dr V Jha (Chandigarh), Dr Sunder Rajan (Chennai), Dr Sampath Kumar (Madurai), Dr Selva Kumar (Tirupati), Dr Kriplani (Mumbai), Dr Ravi Raju (Vishakhapatnam) and Dr Modi (Bhopal).

2 Comments

  1. Dinesh Dinesh Thursday, March 21, 2019

    I am patient of ADPKD and my Creation level is1.6 my age is 31 yrs volume of LK – 445 ml RK-322ml Pl tell me how to cure the same disease

  2. Jasvir Jasvir Tuesday, July 14, 2015

    If you can find treatment. It is vry gud thing.

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